Rt 5 Vernon, NY
Prader-Willi Syndrome has local ties to the racing community.
Layne Parks (Son of Tadd and Linsey Parks and nephew of veteran driver Mitch Gibbs) was born with Prader-Willi Syndrome.
Prader-Willi syndrome (PWS) is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex it results from an abnormality on the 15th chromosome. It occurs in males and females equally and in all races. Prevalence estimates have ranged from 1:8,000 to 1:25,000 with the most likely figure being 1:15,000.
PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity. The food compulsion makes constant supervision necessary. Average IQ is 70, but even those with normal IQs almost all have learning issues. Social and motor deficits also exist. At birth the infant typically has low birth weight for gestation, hypotonia (weak muscles), and difficulty sucking due to the hypotonia which can lead to a diagnosis of failure to thrive. The second stage (“thriving too well”), has a typical onset between the ages of two and five, but can be later. The hyperphagia (extreme unsatisfied drive to consume food) lasts throughout the lifetime. Children with PWS have sweet and loving personalities, but this phase is also characterized by increased appetite, weight control issues, and motor development delays along with some behavior problems and unique medical issues. (http://www.pwsausa.org/)
A web site has been created for Layne as well as many other children who have this horrific Syndrome.
Http://onesmallstep.fpwr.org/dw/users/linseylayne/sauquoit2012 Once there you can learn about this Syndrome and you can make a donation if you would like.
There is also a One Small Step Event that will be held on June 9th starting at 10am at the Town of Paris Recreational Park.
It is a 1 mile walk to raise funds and awareness for Prader-Willi Syndrome. A healthy lunch will be served along with raffles, entertainment, prizes and so much more.
Please take a moment to consider helping these children. Every little bit helps them to get to that extra mile.